Here are most of the pictures we took on Wednesday and Thursday…The first few are of Isaac and Zeb (in one of them) playing with the wagon on the “great big hill” “the biggest hill” in the hallway leading to the MRI department…It was fun and Isaac had a ball!  The last two are from [...]

Isaac is NOT having surgery on his airways.
Isaac does have some funkiness in his urine, which we will not know more about until later next week.
Isaac is a charming and precocious little boy, who melted everyone’s heart whom he met..
One terribly endearing  story was from today. We were waiting for our turn at the ENT [...]

Well, of course, Isaac can’t make anything simple so here  goes…
1. Isaac has significant central sleep apnea with desaturations of at least 4% everytime (45 times in the night).
2. Isaac does NOT have post sigh apneas, nor does he have post arousal apneas.
3. Isaac does have VERY mild and subtle obstructive hypopneas.
Course of action is to [...]

Here they are:
Isaac does have central sleep apnea and MILD obstructive hypopneas.
His AHI was 8.0
His REM AHI was 17.2
His NonREM AHI was 5.2
His lowest O2 was 87%, but the doc realizes that he often drops lower than that.
He had 25 Central Apnea episodes during NonREM sleep and 20 during REM sleep
He had 5 obstructive hypopnea [...]

Isaac is scheduled to see Dr. Hoban (sleep neuro) on January 6th at 4:30pm
Isaac is scheduled to see Dr. Finkel (reg. neuro) on January 19th at 2:30pm
Both visits shall be enlightening…

I did a post a while back with all of Isaac’s docs listed….Here is a brief updated list, since so much has changed since his last birthday in April.
Dr. Yukt Singh: Pediatrician. A Wonderful man, who is attentive and cautious and  practical. He listens to parents and we highly respect his thoughts and opinions.  Isaac [...]

I don’t have too many specifics and can’t even really decide whether to happy or sad about the whole situation.
Isaac STILL has central sleep apnea. This particular neurologist believes it to be “significant” with “concerning desaturations”.  Isaac also has some mild and “normal” obstructive apneas.  We are working on getting a follow-up scheduled to decide [...]

We do not have the results of the study. We have been told to be thankful if we have them before Christmas, but to not expect them until after. I told them I was going to be angry if we didn’t have them before!
The reason for the delay is that apparently they were behind in [...]

It has been brought to our attention that these pictures might be disturbing to some. Please review before letting any of the kids see them (or not see them). Isaac looks like his is in the ICU, but it is really just a lot of monitoring equipment to see what we can find out about [...]

I know I’m late posting pics for this week, but you’ll have to forgive, because I have the greatest news!!!
We met Isaac’s pediatrician this morning! He’s been seeing our family doctor until this last April, when he felt that Isaac needed more specialized care than he could provide.
Anyway, Isaac’s pedicatrician (Dr. Marcus) is awesome! He [...]