Here are most of the pictures we took on Wednesday and Thursday…The first few are of Isaac and Zeb (in one of them) playing with the wagon on the “great big hill” “the biggest hill” in the hallway leading to the MRI department…It was fun and Isaac had a ball!  The last two are from [...]

Isaac is NOT having surgery on his airways.
Isaac does have some funkiness in his urine, which we will not know more about until later next week.
Isaac is a charming and precocious little boy, who melted everyone’s heart whom he met..
One terribly endearing  story was from today. We were waiting for our turn at the ENT [...]

Here they are:
Isaac does have central sleep apnea and MILD obstructive hypopneas.
His AHI was 8.0
His REM AHI was 17.2
His NonREM AHI was 5.2
His lowest O2 was 87%, but the doc realizes that he often drops lower than that.
He had 25 Central Apnea episodes during NonREM sleep and 20 during REM sleep
He had 5 obstructive hypopnea [...]

I don’t have too many specifics and can’t even really decide whether to happy or sad about the whole situation.
Isaac STILL has central sleep apnea. This particular neurologist believes it to be “significant” with “concerning desaturations”.  Isaac also has some mild and “normal” obstructive apneas.  We are working on getting a follow-up scheduled to decide [...]

We do not have the results of the study. We have been told to be thankful if we have them before Christmas, but to not expect them until after. I told them I was going to be angry if we didn’t have them before!
The reason for the delay is that apparently they were behind in [...]

It has been brought to our attention that these pictures might be disturbing to some. Please review before letting any of the kids see them (or not see them). Isaac looks like his is in the ICU, but it is really just a lot of monitoring equipment to see what we can find out about [...]

I just got Isaac’s results today from the BAERS test. His hearing is normal and there are no quirks along the hearing pathway to the brainstem. I do not know the specific ramifications of this yet, and won’t until we see Dr. Finkel on June 16. In the meantime, I’d like to gather a little [...]